An offensively long essay about how life lessons from Tori Amos have helped me see that anger and rage can be useful, but in the end compassion, creativity and setting fire to long-held assumptions may be the only way to end the Lyme disease wars.
Observations and opinions about how Lyme disease can be effectively–and self-defeatingly–communicated.
The bacteria that cause Lyme disease also have been shown to trigger dysfunctional mast cell activation, and mast cell activation causes inflammation that can then bring about a great number of characteristic mild to life-threatening symptoms.
Eighty-five years ago, in 1932—coincidentally during Adolf Hitler’s political ascent in the decade before World War II—the United States Public Health Service (USPHS) commissioned a study to gain a greater understanding of syphilis. S
Sticks and stones break bones, and unfortunately semantics are getting in the way of helping people with chronic Lyme disease.
Lately there have been more headlines about Lyme disease than ever before. Most of them say nothing new.
Lyme disease contains multitudes of mysteries. Is it too complex for some doctors to be willing to manage?
A very long case study of diagnostic medical practice.
Those of us who have navigated the surreal (how did that word become the best descriptor for real life?) nature of Lyme disease, both the symptoms and attempts to find medical treatment, suddenly have several opportunities to find hope in the waters of chaos.
That’s why I was curious to ask Fred about something I have asked and written about, something that has caused some controversy and a few complaints (all from HIV-positive people): Is it fair to say that Lyme disease in many respects is the new AIDS?
On Monday, The Hill newspaper published a story claiming that “The CDC is being influenced by corporate and political interests,” as alleged by over a dozen senior scientists at CDC who collectively call themselves CDC SPIDER – Scientists Preserving Integrity, Diligence, and Ethics in Research. The group has chosen to remain anonymous “for fear of retribution.”
Almost 30 Years Ago, The Golden Girls Showed How Nobody Believes Chronic Illness Patients. Nothing Has Changed.
In 1989, Golden Girls TV character Dorothy Zbornak was mocked by doctors for pretending to be ill. She was treated exactly the way Lyme disease patients are treated today–and she was really sick.
The Journal of the American Medical Association recently disclosed that Harvard scientists in the 1950s accepted a huge payoff from the sugar industry to create and communicate false “science” about the health effects of sugar. And we will never stop believing it.
People who have chronic illnesses frequently end up suffering alone in silence. Today, with the omnipresence of social media, many of us “scream” into the empty void of the world by posting these “invisible illness” or “silent epidemic” memes hoping that other people will see them and understand the unobservable suffering that we experience.
The Patient-Centered Care Advocacy Group has filed a citizen petition with the U.S. Centers for Disease Control and Prevention (CDC) asking it “to end the preferential treatment it extends to the Infectious Diseases Society of America (IDSA) guidelines for diagnosis and treatment of Lyme disease.”
A lot of reporters say, “Oh, if you get bitten, you just get treated and it’s fine, right?” Nope. Not that simple.