An offensively long essay about how life lessons from Tori Amos have helped me see that anger and rage can be useful, but in the end compassion, creativity and setting fire to long-held assumptions may be the only way to end the Lyme disease wars.
Observations and opinions about how Lyme disease can be effectively–and self-defeatingly–communicated.
Eighty-five years ago, in 1932—coincidentally during Adolf Hitler’s political ascent in the decade before World War II—the United States Public Health Service (USPHS) commissioned a study to gain a greater understanding of syphilis. S
Sticks and stones break bones, and unfortunately semantics are getting in the way of helping people with chronic Lyme disease.
Lately there have been more headlines about Lyme disease than ever before. Most of them say nothing new.
Lyme disease contains multitudes of mysteries. Is it too complex for some doctors to be willing to manage?
A very long case study of diagnostic medical practice.
Those of us who have navigated the surreal (how did that word become the best descriptor for real life?) nature of Lyme disease, both the symptoms and attempts to find medical treatment, suddenly have several opportunities to find hope in the waters of chaos.
On Monday, The Hill newspaper published a story claiming that “The CDC is being influenced by corporate and political interests,” as alleged by over a dozen senior scientists at CDC who collectively call themselves CDC SPIDER – Scientists Preserving Integrity, Diligence, and Ethics in Research. The group has chosen to remain anonymous “for fear of retribution.”
Almost 30 Years Ago, The Golden Girls Showed How Nobody Believes Chronic Illness Patients. Nothing Has Changed.
In 1989, Golden Girls TV character Dorothy Zbornak was mocked by doctors for pretending to be ill. She was treated exactly the way Lyme disease patients are treated today–and she was really sick.
The Journal of the American Medical Association recently disclosed that Harvard scientists in the 1950s accepted a huge payoff from the sugar industry to create and communicate false “science” about the health effects of sugar. And we will never stop believing it.
People who have chronic illnesses frequently end up suffering alone in silence. Today, with the omnipresence of social media, many of us “scream” into the empty void of the world by posting these “invisible illness” or “silent epidemic” memes hoping that other people will see them and understand the unobservable suffering that we experience.
Because of the prevalence and severity of Lyme disease in Massachusetts, the state legislature is considering a veto to Baker’s spurious change.
You think about that, what you believe in. It matters now to you and me, what you believe in.
A New York City-based news team is calling on the CDC to clarify allegedly false remarks made during a recent interview about Lyme disease.
People keep asking me, “What were your symptoms? How did you know you have Lyme disease?” To say “it’s complicated” is an understatement.