An offensively long essay about how life lessons from Tori Amos have helped me see that anger and rage can be useful, but in the end compassion, creativity and setting fire to long-held assumptions may be the only way to end the Lyme disease wars.
A very long case study of diagnostic medical practice.
Those of us who have navigated the surreal (how did that word become the best descriptor for real life?) nature of Lyme disease, both the symptoms and attempts to find medical treatment, suddenly have several opportunities to find hope in the waters of chaos.
That’s why I was curious to ask Fred about something I have asked and written about, something that has caused some controversy and a few complaints (all from HIV-positive people): Is it fair to say that Lyme disease in many respects is the new AIDS?
Almost 30 Years Ago, The Golden Girls Showed How Nobody Believes Chronic Illness Patients. Nothing Has Changed.
In 1989, Golden Girls TV character Dorothy Zbornak was mocked by doctors for pretending to be ill. She was treated exactly the way Lyme disease patients are treated today–and she was really sick.
The Journal of the American Medical Association recently disclosed that Harvard scientists in the 1950s accepted a huge payoff from the sugar industry to create and communicate false “science” about the health effects of sugar. And we will never stop believing it.
People who have chronic illnesses frequently end up suffering alone in silence. Today, with the omnipresence of social media, many of us “scream” into the empty void of the world by posting these “invisible illness” or “silent epidemic” memes hoping that other people will see them and understand the unobservable suffering that we experience.
The Patient-Centered Care Advocacy Group has filed a citizen petition with the U.S. Centers for Disease Control and Prevention (CDC) asking it “to end the preferential treatment it extends to the Infectious Diseases Society of America (IDSA) guidelines for diagnosis and treatment of Lyme disease.”
A lot of reporters say, “Oh, if you get bitten, you just get treated and it’s fine, right?” Nope. Not that simple.
Because of the prevalence and severity of Lyme disease in Massachusetts, the state legislature is considering a veto to Baker’s spurious change.
You think about that, what you believe in. It matters now to you and me, what you believe in.
A New York City-based news team is calling on the CDC to clarify allegedly false remarks made during a recent interview about Lyme disease.
People keep asking me, “What were your symptoms? How did you know you have Lyme disease?” To say “it’s complicated” is an understatement.
A local news outlet bests the likes of 60 Minutes, producing the most comprehensive, accurate and responsible special dedicated to Lyme disease to date. We can all learn from this.
Government compliance expert Jenna Luche-Thayer and New York-based news station tell the stories behind the stories of Lyme disease.
This Thursday, FOX NY 5 will broadcast “Lyme and Reason: The Cause and Consequence of Lyme Disease” at 10:30 p.m. Eastern.